Tuesday, December 25, 2007

Pre-Operation

The next few blog posts will be about my time in hospital. I didn't try to record things over that time, because I wanted to concentrate on being well - but while I'm resting and recovering, I thought I'd write down some of the things that happened...

Post 1 : Pre-Operation

Monday 17th December arrived quickly – 3 days earlier I had arrived home from work and found a letter in the mail asking me to check-in to the Auckland City Hospital on Monday, for surgery on Tuesday. Now Monday had come, and Amy and I were at the 8th floor door of Ward 83: Neuro-surgical. A policeman was at the door, holding a semi-automatic rifle. I asked him what was going on, “Oh... Nothing”, he said nonchalantly.

At the front desk we were greeted by Gary, who turned out to be an orderly sitting with the receptionist. The ward's beds were full, so we had to go to another ward. Gary was super-keen to take us there, and was halfway down the hall when we convinced him to wait and check with the receptionist. Turned out we needed to take my folder and details so it was good we reigned him in a bit. We found out later that Gary wasn't just any old orderly though, and it was good to have someone so enthusiastic around. I asked Gary about the armed guard on the doors but he wasn't allowed to say.

I was given a room in the Rakino ward, on the old side of the hospital. Much better than I would have got in the neuro-surgical area where you share with at least 3 others – this one was private with my own ensuite.

A nurse came in after a while, and put a line into my arm, and told us that I was 2nd on the list for my surgery – unless there were emergencies overnight, it should be in the morning. Soon after I was wheeled away on my bed to have a CT scan on my head to help guide the doctors as they operated.

Back in my room, the anesthetist visited me to talk about the next day. She explained the process – I would be under general anesthetic and, between leaving my room and back, it would take about 3 hrs – with the operation only taking about 9-11 minutes! The rest of the time is taken up by waiting in a pre-op room... moving to the operation room... receiving anesthetic... monitoring my reaction... putting in other lines and a pipe down my throat... and then probably countless other things.

The lines I loved from her were:
“We will be putting another line into a vein in your wrist. When you wake up there might be a numbness and inability to move your hand. This is usually only temporary. Are you left or right handed?”
And:
“When people wake up, they aren't normally in excruciating pain.”
Despite these caveats, she made me feel really safe and confident in how it was going to go.

The next visitors came bearing gifts! Sherlock Holmes and Asterix books, and one very cool remote controlled helicopter that Amy had enlisted them to buy!I spent the afternoon playing with the helicopter, between visits from family. We worked out that the police were there because someone from Auckland prison had head injuries. At 8 o'clock visiting hours were over and everyone had to leave me to my books, and my looming operation. I read a couple of the Sherlock Holmes stories and spent the rest of the night thinking about not thinking about my operation! At 2AM I was visited by the nurses, and was instructed to stop eating.

Tuesday, morning of my operation, I was kept busy by nurses coming in and asking questions, and took my last nasal decongestant to clear my nose. To get at my brain, the surgeon was going up through my nose, to the brain's underside, where the pituitary gland is.At about 12PM, I was taken to the pre-op area and waited with Amy at my bedside. Amy was amazing and there were a few times where I would have lost it if she didn't look so confident that it would be OK.

At this point, I should flash-back a month or so, to my meeting with my neuro-surgeon. When someone tells you that you need brain surgery, a lot of what they are saying gets lost in a mind-traffic-jam of thoughts. This is what I picked up then, and what I was thinking about in the lead-up to surgery:

“You need to have brain surgery... blah blah blah... tumour... in operation you have a 1 percent chance of dying... blah... blah... 1-2 percent chance of a stroke... blind... blah blah... up the nose... through bone... sphenoid sinus... cut... blah.. cut... gland... hormones... possible inability to have children afterwards... blah blah blah... wake up ... feel you've been punched in the face... blah... headache... panadol... 3-4 days... walking... blah blah... this is brain surgery... 3-4 weeks... blah. blah... any questions?”

As my bed was wheeled through the big swing doors and down the corridor to Operating Room #1, I focused on a few things:
- I'd discovered my neuro-surgeon had operated on Keith Richards after his fall (I'm getting star-treatment from a surgeon to the stars);
- My neuro-surgeon was McDreamy (OK, he wasn't, but I pretended he was);
- I was in operating room Numero Uno (that's gotta count for something!);
- And I was going to be FINE!!!

Lying on my bed, I was wheeled into the operating room. I met my neuro-surgeon for the second time. He smiled at me and said, “I told you we'd get you in as soon as possible.” I wanted to say something about the short notice, but was a bit pre-occupied with the surroundings and impending event that all I managed was a smile and, “Er... Yeah”.

Similarly, when they showed me the view out the window – over the city and out to Waiheke – all I could think of saying was: “That is a good view.”

The team of 4 or 5 introduced themselves to me, and joked around as I moved from my bed to the operating table. Once my body was in position, the anaesthetist said she'd give me something for my nerves. I watched her take the line in my right arm, and connect something (a syringe?) to it...

That's all I remember!

Will Damen survive the surgery? Will he wake up blind? Will they get the tumour?
Find out in the next thrilling installment of OPERATION DAMEN!

Sunday, December 16, 2007

Sunday

What do you title the post one day before you go in for brain surgery?

Sunday - the day of rest - or theoretical rest anyway. I've kept myself busy to try not to think about things too much, even if the things I'm doing are directly related to getting ready for this thing.

Just thought that I would put a picture of the tumour on here - this is the actual MRI of my head, (with an outline overlaid to give the general idea of the layout).That's where the tumour is - 10 peas worth!

Friday, December 14, 2007

3 Days to D-Day

Well, this is my first post in this blog. Not sure if I'll tell anyone about it yet, or whether I'll actually continue with it, but I thought it would be good to have at least a couple of posts from before the surgery. Partly because I'm interested in observing how my personality might change before and after the operation. In reality I don't know what'll happen over the next week/months/year, but I'm recording it. At the very worst it'll be boring as hell, because the surgery hasn't changed me - here's hoping I don't find anything too interesting to write about!

Here's a quick run down of what's happened in the last 6 months before I arrived here, at 3 days to D-Day.
From the start: In July this year I had a seizure. This isn't new - I have epilepsy - but soon after that one I had another, so as a precaution I was taken to hospital. In subsequent scans from that seizure, the doctors found a tumour in my pituitary gland. (This is a gland at the bottom of the brain, directly behind the eyes.) The good thing about tumours in this place is that they are benign (non-cancerous).

Since then, I've been going in for tests and scans to identify the size and severity of the thing. Things that I've learnt include:
- It's called a pituitary macroadenoma.
- the pituitary gland is normally about the size of 2 peas. At the moment it's about 5 times that size. (10 peas - or a small artichoke)
- the pituitary gland is below some optic nerves. If we leave it, I could go blind as it grows and puts more pressure on the nerves.
- (sorry, I can't think of anything else right now!)

Last week I found out that I need to have surgery to remove the tumour - but not just any surgery - brain surgery! They put me on a waiting list, and told me it would be around January/February.

This evening I got home from work and there was a courier-letter in the mailbox saying that I have to go into hospital on Monday 17th (this Monday), to prep for surgery on Tuesday!

I had planned to chat to all of my friends and family in that 30 days. Now that it's three days I've had to send out an email.

Apparently the operation will take me out for 3 or 4 days, then I'll be recuperating for up to 4 weeks (I'm aiming for 2-3).

So yeah. I know there will be heaps of unanswered questions, and I'd love to give you my doctor's phone number so he can field them - since I've been given no notice - but in reality, I'd prefer my neuro-surgeon relaxed and ready for my surgery.

This website here was good for answering a lot of the questions I had - feel free to have a browse, otherwise I'll regale you with tales of hospital room drama when I see you again.
POSTSCRIPT: Funny thing is, I've been thinking that I'd be more afraid of the surgery as it got closer to the date (jan/feb). Now it's in three days, I don't have any time to do anything! At least after finding out - I had enough time to catch the last 5 minutes of Shortland Street and see who the killer is!